Category Archives: Justice

Legion

I’ve been thinking about this post for a while. There is a show on FX called Legion. The main character, David, is diagnosed with schizophrenia and lives in a mental hospital and has unusual delusions and paranoia (normal symptoms of schizophrenia). Except maybe that’s a dream and he has special powers that haven’t been harnessed. He even visits the astral plane of existence. But then we return in the next episode to discover that all of those people who talked of his special abilities are also hospital patients. 

So is he schizophrenic, or does he have special powers, and the hospital is a dream or projection? That seems to be the central question of the series.

My question is about the portrayal of mental illness and mental hospitals in this series. Is it sympathetic, and does it help people understand illness and hospital life better? Or does it drop to society’s most basic fears of mental illness and being “locked up in the looney bin”?

The show hasn’t answered its own question yet about whether David is schizophrenic. But if he is, he is having the grandiose delusions and paranoia typical of schizophrenia. And the hospital is the right place to keep him safe from living out his delusions in a way that could hurt himself or others. And the show is honoring the role of hospitals and the reality of living with mental illness. 

If, however, he has special powers, perhaps his mind is retreating into mental illness and a mental hospital to keep himself safe from his powers. Does that mean the series is portraying mental illness and mental hospitals as a place for weakness and hiding from reality? 

That is my fear, as a mental illness/health advocate. 

Residential, Part Two

Still plugging away at the hours of group and individual therapy every day. There is a little more space from Friday afternoon through Sunday afternoon, but there are still groups and there is always the homework your individual therapist gives you to do.

I’m doing well and progressing rapidly. My insurance is not happy and I may not get my full 30 days, however necessary my therapist, psychiatrist and I think and feel. Next review is Monday. Might be home next week if they stop paying. A real shame since I’m doing so well in this intense environment.

I hear I missed a good blizzard in my area by being here. Kinda bummed about that since I love snow. ūüė¶

Thinking of all of you and glad for the cards and good thoughts. Keep ’em coming! Check with Barb for the address.

The Financial Costs of Bipolar

<rant>

bill1. I just received my first bill for the 58 days I was inpatient hospital this winter (plus another 21 outpatient). It only covered the first 11 days and was OVER $30,000!! I have pretty good insurance, which knocked my deductible/copay portion down to $1200 – which again, is only for the First Eleven Days!

Eventually I will run into my co-payment maximum for the year as these bills come in, thank goodness! (I think it’s near $3000, again, I’m lucky). But I will be on an 18-month repayment plan. Do you get that? I will be paying on Winter 2014’s hospitalization until FALL 2015!

What if I need another hospitalization in 2015? Then 2015’s deductible and copay are in effect, and I’m paying on that until 2016, and so forth and so on.

This has been going on for nearly 4 years already. Just 2 months ago, I finally finished paying off Winter 2013’s hospitalization.

 

2. While in the hospital for 58 days, I had to resign my job because I couldn’t work then or with the projected state of recovery I’d be in. Another financial cost. My part-time job could have paid for the medical bills. It could have offered some cushion in my savings, which is fast dwindling. It could have gone toward philanthropic giving which is important to me.

 

insurance3. I’ve spent A YEAR arguing with an insurance company about paying a provider that I see several times a month. I pay a copay amount each time, and so the provider gets some money. But they have not been paid in Over A Year!

I’ve told the insurance company that Medicare won’t pay. I’ve shown them the Explanation of Benefits that shows that Medicare won’t pay. The provider has sent letters saying they don’t work with Medicare – all of which have been lost by the way.

And the insurance company keeps sending out forms to fill out “We think you have another insurance. Please fill out the information here for coordination of benefits.” I think I’ve talked with every coordination of benefits officer they have at the company.

And it seems straightened out. Until a bill is submitted. And a denial comes out. And I ask what do you need to pay this? And I do this and the provider does that, and the bill still doesn’t get paid.

Finally I talk with a super-supervisor (since the company won’t give me a dedicated account representative. “Any of our staff are qualified to handle any issues you may have” my ass.) She understands exactly what is going on, sees what I’ve submitted most recently, thinks all shall be paid.

And then I get a call from her. Nope. My provider needs to send in Another Letter, Identical to the Ones They’ve Sent In Numerous Times. This time it will directly to her and all the appropriate notes will be made so that there should be no more trouble.

A Year.

A Year this has taken.

And I have no faith that this won’t happen again with this insurance company or any others. I spend hours each month coordinating benefits between Medicare and my secondary carriers. What do people do who are not able to do that? At least I have the faculties most of the time to do it and follow what they are saying (even when it’s out of both sides of their mouths).

::SIGH::

</rant>

Able to Work or Not?

So, with last month’s sudden hospitalizations…

I’m questioning whether I could even hold a job that wasn’t as flexible as the one I have now. While they were Not Happy to have me gone for 3 weeks so suddenly, no one died, the little bit of important work was picked up by very capable board members, and the non-important work was blown out of proportion for having been missed.

That said…

This was the first time I had to take time off for my mental illness. I was off for 3 weeks because of cancer surgery. The office knew weeks in advance that I was heading out, and had 2-3 weeks notice of the surgery date. However, my dr very much under-estimated the amount of time I’d need to be out. I’ve taken off 2 other days because of headaches from hell. One day because of an all-day dr appt downtown. All the little flexibilities or single days here and there, I have made up the hours. It’s not like I’ve left anyone high and dry. I schedule appointments outside my work hours. Most of the time I have to change my work schedule because the office wants me at a meeting or fundraiser that is in the evening.

This was the first time off that was sudden. First time for me to have to wonder very deeply whether I can work a job with a lot of structure, whether part time or full time. Is that an accommodation I can ask for? Do I ask for it up front?

I checked ADA (Americans with Disabilities Act) for info. First off, it applies for workplaces with 15 or more employees. So I’m SOL at my current place should that be needed. But in the future, do I ask for reasonable accommodation regarding the need for unpaid or paid medical leave, even with short/no notice? I suppose so. I don’t know that I can ask for that legally at my current place because of the employee number restriction, but also that the “reasonable accommodation” could be considered a hardship to the business. Debatable of course (considering the evidence of the 2 times I was gone for 3 weeks).

I hope one day to work full-time again, likely in non-profits or medical or some kind of justice, compassion, social-awareness field. I’m questioning that again. Maybe this goal will take longer until going into the hospital is an anomaly instead of something that could happen at any time, as the situation currently stands.

Interesting side-note, but relevant none-the-less, I’ve been flirting with the idea of being a CT technician. I learned a bit about the training process quite a while ago. Then this week I checked into the College of DuPage program here. Yeah, um, there is NO Way I can pass the physical exam required of all students. I will not be able to position patients and move heavy machinery into place. To be a CT Tech, you get trained as a radiologist (x-rays) first, then additional work afterwards for CT. Even though CT would be physically easier for me, I can’t get there if I can’t be a radiologist first. Disappointing!! I was looking forward to that kind of schooling and job!

So back to questions and wondering and depressing outlook on my possible work ability. What in the world am I supposed to do with my time if I can’t work??? (Ok, volunteer – less stressful and more flexible for medical crap I deal with) How am I supposed to pay the rent?? Who am I supposed to be if working isn’t even a small part of who I am and what I do?

SIGH.

Another Round

I had the wonderful privilege to hear the Chicago Gay Men’s Chorus in a benefit concert for The Trevor Project, which¬†is the leading national¬†organization providing crisis intervention and¬†suicide prevention services to lesbian, gay,¬†bisexual, transgender, and questioning youth. Beautiful music, fun spirit, and we raised twice as much for The Trevor Project as the group expected.

Despite taking it easy this morning so that I’d have energy this afternoon for all the face-time with people and being in public, I came home completely wiped out. One reason, sadly, is that this afternoon I have NOT been in a good place. Lots of shouting thoughts about leaving the planet, not wanting to be alive and ways to do make it so. I hate this!!! Such a waste of decent energy to combat the thoughts, stay in the present moment, follow safety plan, use skills. All so that I don’t follow through, when I’m not even sure that I want to stay. I hate this!!! Did I say that already?

What boggles my mind is that I can have had a lovely time at the concert and be lifted up and plunged down deep by beautiful music. AND I can hear an internal voice that wants to push me over the edge into suicidality again. Both at the same time. It’s similar to putting one foot in front of the other and doing things I’m supposed to in order to get better: volunteering, exercising, taking my meds, being social, eating healthy, increasing care of the house and cooking. And I can enjoy many of these things. AND not have hope that I will get better or get to the next stage of health. I realize I’m so much better than I was a year ago. Yet I have this never-ending tickle and voice in my head that I will not make it and there isn’t enough to live for.

I didn’t use to be this way. It’s wearying to be this way, for two years. I wish y’all could just hand me hope so I can hold on, but it doesn’t work that way. It has to come from inside.

I’m Blogging for #MentalHealthBlogDay

http://www.healthyplace.com/ is doing a Mental Health Blog Day. Come hear the voices! Check out the blogs at @healthplace or the hashtag #mhblogday

 

I blog about Bipolar Disorder because I need a community to help me understand what I’m going through and remind me I’m not alone.

I blog about Bipolar Disorder because I need to understand what I’m going through, and as a writer, I can process my thoughts and feelings best through words.

I blog about Bipolar Disorder so others can see a face and hear a voice of a friend who has a mental illness. Perhaps they learn about mental illness because it has touched someone they know.

I blog about Bipolar Disorder because I’m allowed to have a voice and exercise it. Bipolar Disorder is something I have lots to say about right now, and feel I can be most vulnerable about, despite the stigma.

I blog about Bipolar Disorder because the more stories that are out there, the less stigma will grow. We are neighbors and friends, coworkers and family.

I blog about Bipolar Disorder so that others might click on links I have on my page to find others’ stories, or help when they are feeling dark and alone.

Since I started blogging about Bipolar Disorder I have come to a better understanding of my own disease and how it progresses. I’ve seen movement toward stability – especially when others point out when I’m doing better.

Thank you for reading and being a part of the larger community we all share.

Caught in the Middle: Oscar Romero and Me

Archbishop Oscar Romero

Did you know that today is the anniversary of the assassination of Archbishop Oscar Romero? March 24, 1980 in El Salvador. From his Wikipedia article:

Traditionally, the church had been complicit in the aims of the state and military to privilege the wealthy and powerful while the majority of the population remained in abject poverty. [Romero] spoke out against poverty, social injustice, assassinations and torture.

But it is important to note why [the Church] has been persecuted. Not any and every priest has been persecuted, not any and every institution has been attacked. That part of the church has been attacked and persecuted that put itself on the side of the people and went to the people’s defense. Here again we find the same key to understanding the persecution of the church: the poor. ¬† ¬† ‚ÄĒ¬†√ďscar Romero,¬†Speech at the Universit√© catholique de Louvain, Belgium, Feb. 2, 1980.

Romero was shot on 24 March 1980, while celebrating¬†Mass¬†at a small chapel located in a hospital called “La Divina Providencia”, one day after a sermon where he had called on Salvadoran soldiers, as¬†Christians, to obey God’s higher order and to stop carrying out the government’s repression and violations of basic¬†human rights. According to an audio-recording of the Mass, he was shot while elevating the chalice at the end of the¬†Eucharistic¬†rite.

 

When I learned about this martyr while in college, I was struck by his radically different view of faith and of the role of the church than the way I had been trained to think. A chord was struck. I think his words and his actions triggered my now deep-seated belief in social justice, human rights, inclusiveness, cultural education and sensitivity, and equality among all people and opposite all -isms.

I fail a lot at living up to this belief, ideal, and way of life. But I try very hard. I could probably be more outspoken though.

I’m caught in the middle of this ideal right now. I feel deeply about and for all the people suffering under classism, racism, sexism, homophobia, cyclical poverty, imperialism. I feel helpless to do anything, though I follow stories from the news through my social media outlets. I offer up what little prayer I have in me these days.

But deep down I feel like I need to be on the receiving end of some of this justice and attention. Though I don’t know if I am as deserving as those I pray about.¬†There is huge stigma through all cultures about mental illness – check any kind of media for portrayals and assumptions.¬†I’m suffering, not necessarily because of this stigma, but the stigma certainly limits the kind of community I can find. And my inabilities from the illness itself limit the community I can find to help me through this life. I’m suffering, daily, to make it through each day with enough hope to keep doing the things that promote life rather than give in to the hopelessness I feel that will lead to certain death.

So I am pondering the martyrdom of Archbishop Oscar Romero who stood up, did the right thing, spoke truth to the Church and culture. And I am pondering my being in the middle of that – needing to stand up but also desperately needing others to stand up for me in this time.