New, and exciting? Depressing? Things afoot.
I need the support of my family to feel better and be more stable. So I’m moving from Chicago-land to Dallas area (where they currently live) to live with my brother and parents (who also live with him).
It’s rather sudden. I’ll be in IL for two weeks to see doctors and friends and to pack. My mom is coming with me, and my cat is returning with us. Now that will be an adventure!
Then two weeks later my brother will fly up and drive the moving truck and car trailer down to Texas. Before April I’ll be settled and a resident of Texas. ((((Ew, not a fan))))
A lot of friends will be involved in the moving. Thank you!!
And I will miss dearly all my friends and my mental health care team. It hurts.
It hurts too that I’m giving up my independence for my health, which, while probably the best decision, puts two strong values opposing one another.
I will probably move into my own apartment within six months about a mile away. I hope that physical closeness will provide support and independence.
So much is happening so quickly. My psychiatrist gave me haldol instead of Ativan to help with anxiety. It’s working. I’m in so much grief over losing relationships that just are not going to survive the physical distance. Don’t let it happen again.
I made it through my riskiest time of year. I did get the Christmas delusion and grandiosity a day or so early and lasted for a few days. In fact I still have the fear of the mystical and mysterious that comes with the manic experience.
See, I grew up very religious. From the time I was 9 or 10 I had the experience that I was participating in the birth of Christ in some way on Christmas Eve. It manifested as a sense of the mysterious, mystical, numinous, though I couldn’t use those terms or images until I was a young adult. By the time I was in seminary preparing to be a pastor, the feeling was strong and the experience included the sense that I helped bring/was bringing Jesus into the world and I had a special mission to bring hope or joy or love or unity into the world through Jesus.
I know, a little over the top. I even thought most people had a sense of the mystical on Christmas Eve. It wasn’t until weeks of therapy around this time of year over several years that I knew in my heart and mind that it was a manic experience and that most people don’t have a mystical experience at Christmas Eve, and I couldn’t bring it out with my worship services.
Now that I’m aware of all this, I get anxious as I anticipate this manic experience. I try not to anticipate but I do. I avoid my church during the weeks leading up to Christmas (Advent) because the focus is waiting for The Christ Child to come again and our participation in the peace, joy, and love in the world. Even though I didn’t grow up with this liturgical rhythm, you can see how it would be Not Helpful. Not only do I lose my church support system, I am faced in my mind with what I’m missing. So it’s hard not to anticipate the delusion and grandiosity.
Today is New Year’s Eve, and I am still scared of the mysterious and mystical. I’m glad the weather is bad enough I can’t travel to a New Year’s worship service. There might be too much of “opening the mystery of a new year” or that’s where my thoughts might go. Not Helpful. I’m still scared.
In the new year, I’m hoping for mental stability and the ability to ask for and act on help when I need it. I hope I don’t need the hospital. I’m also hoping to find that special someone.
Good news! I haven’t been so suicidal that I haven’t had to go to the hospital! I’ve been increasingly suicidal the last week. But I’ve promised myself I won’t follow through, even when tempted to follow through.
My mom came back with me on Halloween for a few weeks, then extended to a month to help me adjust and get settled and give me moral support for the routines I need. I sadly got bronchitis so I haven’t been able to exercise, which would have helped my mood and my routines. I did adopt a cat! Charmer.
After a lovely Thanksgiving with my mom, she left and I was able to adjust for a time. Then my finances fell out from under me and my bank was not helpful. I was totally destabilized emotionally and mentally. I got help from my family and from my church and a friend’s church. One of the problems was an increase in intensity in one of my medical diagnosis and needed medical supplies and drugs. And I would run out of food at the end of the month.
So, my family is taking me back to their house again, for a few weeks to stabilize emotionally and mentally. The rest of my life seems ok. Getting over bronchitis so I can exercise, making meals, finances stabilized. But I’m not.
I feel broken, inside and out. My mood was destabilized and it’s not righting itself. As my psychiatrist pointed out, this is a difficult time of year for me and getting family’s support would be helpful. She also wants me to practice self-forgiveness for all the financial mishaps. And self-compassion that I need help. She increased my anti-anxiety med too, since I feel more anxious too.
I feel like a failure for needing help. I feel like a failure that I let my finances blow it for me. Just when I was getting on my feet after my mom left. And now I’m going back. GRRRRR.
I have come to the end of my time with family and becoming comfortable with healthy habits. That was the goal, and it took a few weeks longer than expected, but I made it. I feel ready to go home to try my hand at healthy habits and routines in my own environment.
The only way this step is possible is that my mom is coming home with me for about two weeks. We get home on Halloween and she will keep me from getting overwhelmed those first few days with everything that needs to be settled.
I’ve already paid bills and picked up meds for the month. Just need groceries (thank you Peapod for delivering most of them), a stationary recumbent bike from Play It Again Sports, and car care. Plus I have appointments with my therapist and with my psychiatrist.
A busy first few days with trying to stay/establish working out routines and cooking routines.
I’ve been on and off anxious, even knowing my mom will be there. My therapist is encouraging me to think of this as opportunity rather than anxious-making activities. I have the opportunity to remake myself for the better.
So that’s the growth mindset I’m trying to have.
Well, it has been way too long, dear reader, since I have checked in. A week after finishing the outpatient program, I flew from Chicago to Dallas to spend a couple months with my family. The purpose is establishing healthy routines I’ve fallen out of. The very routines that could anchor me and my moods in an environment that will help stabilize the swings. Plus I’ll be in a supportive, social environment to help make the process a success.
That stabilization is the theory anyway. 😀 My therapists and psychiatrists are on board. And so I’m giving this a try.
We are focusing on getting up and going to bed at the same time (something I’m already ok at), showering regularly (which I’m not good at), eating regular meals with more healthy snacks. I’m also focusing on regular exercise by walking after breakfast and water jogging three times a week, with some treadmill thrown in. I’m going to church on Sundays, an important part of my spiritual practices.
I also brought all my art supplies and books and paper, and there are puzzles here, to do some art therapy and some mental exercising. It’s been two weeks and I’ve already finished my first 500-piece puzzle ever!.
Sadly, with all we are doing, I’m still heading into a depressive episode now and I’ve been feeling alone, fearful and suicidal (with plans) too. I can’t win. And I’ve gained weight even with all the focus on losing weight. Gah! Not helping.
I talk to my therapist once a week. Today we talked about my resistance to defusing from my thoughts (ACT skill), and how I can use my support system better, when I’m out of my home and close to them.
I just don’t want to feel alone and fearful anymore. Here or at home.
asMid January through early February I spent in the hospital. Yes. Again. My psychiatrist was adamant we need to find another way than bouncing in and out of the hospital. I agree! The changes we agreed upon were staying with friends if I didn’t feel safe. That would allow me to ride the wave of emotions longer without using the hospital before I need it. And it would provide a chance for me to trust myself to keep myself safe. These things seem basic and “Why didn’t you try them before?” We have, but not with the same rigorous energy to keep me out of the hospital. The bouncing this time was ridiculous.
In other news, I’m still in physical therapy after shoulder surgery in early December. It still hurts, and the exercises seem to make it hurt even more. This pain has kept me from getting back into the pool for water aerobics. I’m too concerned about damaging the progress we’ve made. I could go to the gym and focus on the lower body. I’d be moving and re-establishing the habit of going to the gym. The water aerobics classes that are best for me are in the evening. But going to the gym in the afternoon and evening uses up any available energy. I’m a better morning exerciser.
A real factor in the exercise department is that I’m depressed and low energy from the depression. Any extra energy anywhere is like pulling teeth. So even though there is concern about hurting my shoulder in the pool exercises, the going-to-the-gym option seems less of an option because I am depressed. I already feel bad about myself. Now I can have guilt for not exercising added to that. Another real factor is that my drugs keep me hungover for most of the day too. And yet another real factor is that I made the decision I’d rather be healthy than skinny. That doesn’t help motivation to get back to the gym. I do still want to work out, but I’m less concerned with weight loss. Might be a mistake, but my mood affects the decisions too. I’m still trying to manage the mood. How am I supposed to manage pain and weight loss too, when my energy is zapped and I feel horrible about myself anyway?
One foot in front of the other in a boring life right now.
Wow, it’s been a while since I blogged. Sorry, dear readers.
One reason is that I met someone special and we are beginning to share our lives together on a more permanent basis. The process is slow because he also lives with mental illness, and putting us together means my or his illness can interrupt plans to spend time together.
Another reason is that I had shoulder surgery in December. I’m now in physical therapy and function is getting better, but strength is still elusive. All in good time.
The major reason I haven’t written in a while is that I have struggled with my Christmas delusion (that I am bringing Jesus to the world and have a special mission to bring unity or hope or joy to the world). Fortunately it only showed up a week ahead of Christmas Eve. I was on haldol to keep me in this plane of existence, but I did experience psychosis from time to time when I was not in touch with reality.
I went off the haldol – as my doctor indicated – when the delusion passed. Unfortunately my mood tanked and I ended up in the hospital for a few days before the new year. Putting me on low dose haldol brought my mood back to mostly stable so I went home for the holiday.
Then last week my mood tanked again – no trigger. So frustrating. So shameful to me to have to go back to the hospital for no apparent reason. Especially after only 10 days. No med changes were made, much to my chagrin – fix something! I thought. Suicidal thoughts eased up as did my depression, and I was discharged on Friday. Another short stay! Hooray!
Now, it’s been a couple days. I can feel the suicidal thoughts again building up steam. I can feel my mood tanking. I don’t want to go to the hospital again, but I feel it coming up again. It seems the only time I stay out of the hospital are the times I mostly seem “up” which means hypomanic or manic, usually the summer. And I hate the summer. I’d rather be in the hospital then, than the rest of the year when I like the weather better and can find some solace in the times of the year.
I don’t know what to do now. I committed to teaching middle school at church next week. But I might be in the hospital again. I see my psychiatrist tomorrow and she may send me there. I try to make plans and my mood always wins. This is so freaking old. And I always feel ashamed when I walk onto the adult unit – again. Why can’t I take care of myself? And it’s hard to explain to a new person in my life. Though being in and out of the hospital shows part of the story.