Category Archives: Support System

Stable But Anxious

Anxiety is kicking my butt. So is EMDR (Eye Movement Desensitization and Reprocessing – read more here: https://www.healthline.com/health/emdr-therapy). I’m concerned that I need additional meds to deal with the constant high anxiety since coping skills and current meds are not keeping my distress at bay. But I have been in a stable mood state for the last couple of months! I’m at baseline again for the third time in a year – the most stable I’ve been since diagnosis in 2010. I’m amazed, and astonished, and grateful.

Instead of the ups and downs of mania and depression, I am plagued with high levels of anxiety right now. A great deal I can attribute to EMDR. There is anticipatory anxiety the day or two before my weekly session. There is the anxiety brought up in the session itself, deliberately, in fact. Then there is the anxiety for days afterwards as I process old memories that connect to current relationships and feelings and suicidal thoughts. The goal is reduction of the suicidal thoughts, and in order to get there I have to go Through the memories to reprocess them. So, anxiety arises. Which sucks.

There are so many racing thoughts and then feelings that are causing anxiety in addition to EMDR. One major thing is the upcoming transition in living situation from a family home to a significant other’s home. Besides changing address everywhere (I made a list!), there are community resources that will change too since the new location is an hour away. Picking up and moving is so damn hard! Changing communities is anxiety-provoking! But I’m going to a healthier place for me, where I can be myself All the time. The price is additional anxiety about breaking up interdependencies and about creating community again.

Throughout each day I’m dealing with higher generalized anxiety plus these recurrent larger anxieties. There are normal jitters about a newer relationship, and normal jitters about owning a car again. There are abnormal jitters about a tendency for delusions and mania in December. Just life itself and making it through each day and night is causing jittery anxiety. And one of my major coping skills and time fillers – reading – is still on hiatus. The letters and sentences jump around and I can’t focus enough to make sense of them. One time when this happened during this bipolar time, it took two years!!! to get back to reading. It’s so bad that I can barely read Facebook or Insta posts. And I can’t even read this post to check for readability and typos. The lack of reading is causing anxiety too. Great.

My Therapist Told Me To Write This

I’m having a hard time telling anyone close to me about my suicidal thoughts. So my therapist told me to write about my feelings. I’m not talking about them because I don’t want them to be real, maybe? I don’t want the ECT to be wearing off? and I don’t want anyone to encourage me to do ECT again? All of that probably.

But I have to remind myself that I’m in a new place with my bipolar and its treatment. I’m in control of my treatment. And if I want to use only medications, then that’s my choice. And if my psychiatrist can’t find medication to help the OCD suicidal thoughts, then I’m back to discussing how to manage them with my therapist and using coping skills.

So here I am using the writing coping skill as instructed by my therapist. I’ve got frequent images of one plan to kill myself in my head, and negative self-talk swirling through my mind. People would be better off without me, type of stuff. I can tell myself my brain is lying, but I still believe the negative self-talk for a while. And when the self-talk and images coincide – as they do regularly – I find myself rehearsing the plan, or starting and then stopping. I really don’t want to die, do I? It’s hard to tell. With all the crap in my head.

I haven’t been able to tell my family, or to contact the Crisis Text Line (741741) or the Natl Hotline (1800-273-TALK). Obviously I contacted my therapist, who told me to write at the minimum. I did tell my church and my online community of friends. After suffering in silence for two days. I’m tired of suffering and I’m scared to tell.

Shootings, Suicide, and Spirituality

I am sick to death of shootings that kill or injure ANY number of people, not just the ones that “score” enough deaths to be considered “mass” shootings. My heart hurts. My soul is heavy. My body itches to DO something to ease the enormous pain my country is in.

This is not a new feeling. I can remember the ache as far back as childhood when gang violence in the cities was more likely to make the news than a lone wolf, cis- and young white male with a high-capacity gun was.

Yes, I said it. The problem is not just guns, though background checks and limiting them will make a huge difference. The problem is not just access to mental health treatment, though some of the shooters may not have been in treatment for their mental illness. No. I believe the current problem lies in cis- white, patriarchal supremacy that is replete through American culture.

Unfriend me if you wish. I just needed to say it. Because ever since we had a week full of violence in California, Texas, Ohio, and Illinois, just to name the ones I happened to hear about, I’ve been quiet and hurting, nauseous and aching for the pain, loss, and fear. I’ve also felt more suicidal, more often than usual, with the accompanying feelings of emptiness and lack of purpose.

Then a notorious, alleged criminal is said to have died by suicide (many think not, icymi). Just having suicide in the news is a trigger for suicidality for me. And now he won’t face the justice likely to have come down on him for atrocious acts. Many hearts scream for justice, and I hear them. And death seems a real possibility again.

I talked with my therapist about the suicidal thoughts and was reminded of coping skills that I can use before the feeling gets intense. Going to church is one of those coping skills, something I do to be social, to be encouraged toward ethical action, and to be inspired by the good that IS in the world. Then today, at the beginning of a service to recognize the grief and pain and urge to act because of the shootings, the suicidal feeling came back again. In my last community, I would very often drive to church with hope, only to leave suicidal. That hasn’t happened much in my current community, but here it is, happening again.

I’m using coping skills – such as blogging about my feelings – to ride out the suicidal feelings. But my heart still aches, and my stomach is nauseous.

A Resolution – Finally

I felt alone. It seemed everyone around me wanted me to continue with ECT. Yet it’s my decision. It’s my body. I live with the illness – and it’s consequences. I live with the treatments and the symptoms of anxiety they cause in me. Here is what I decided after several conversations with my therapist, my psychiatrist, the ECT team, and my mom. I even read medical journal articles.

I want my life back. I want the anxiety I’ve been living with to be back to reasonable levels that I know how to live with. My mood has been stable and my psychiatrist expects it to stay that way. I hope he is right! I’d like to learn how to live with a mood that experiences many emotions without dropping or accelerating into a mood state.

I decided NOT to do ECT anymore. I want to try medications again if my mood becomes depressed or manic again, or if I become suicidal. I have to get the port in my chest removed again since I no longer want to do ECT. (The port was used to access a vein so that nurses didn’t have to try multiple times per treatment to create an IV.) ECT has been helpful for getting my mood to baseline, and perhaps it would help in the future too. I’m just not sure, I don’t like the reaction I have to treatments (days of anxiety), and I’d rather work with pills. ECT had been a last resort when I started it last fall, and resumed it this spring and summer. I just don’t think it has to be my Go-To treatment method anymore.

I will be super vigilant about routine, schedule, taking meds, nutrition, exercise, coping skills, and sociability as I try to maintain a stable mood with these things that have Not proven to work before. But I will do what is personally in my power to care for my multiple mental illnesses. I will work with my psychiatrist for meds and therapist for coping and exploration as needed. I will reach out to others for support on a regular basis. So don’t be surprised if I contact YOU!

I’m taking my life back.

How Best to Take Care of Myself

Anxiety has been my constant companion at an elevated state since the f*** up at ECT nearly 10 days ago. If my anxiety was at a 9 last week at therapy, it was an 8 this week. Ooooo – totally getting better. Not. I cried through most of the session again this week. And off and on the rest of the day afterward.

This is what I am holding on to. My therapist reminded me that it is my decision whether or not to have ECT. I have been through trauma related to the anesthesia of ECT that I keep reliving every.single.day multiple.times.a.day. Leading to panic and anxiety going up and down all the time. I no longer feel safe in my home or alone. The anxiety is waiting to get me, sometimes as an anxiety attack or as people or things waiting to jump out at me. While ECT has helped my mood like no drug ever did – I found baseline for me! – it has now ruined my life, in my mind. I might be exaggerating, yet I’m miserable now.

Before my next treatment, I have a second opinion appointment which is designed to see if ECT is helping and still beneficial for me. I promised my therapist and mom, I will tell him everything, from how much better my mood is, to the plan to do maintenance treatments so the results last longer, and now how the anxiety from the anesthesia gaff has traumatized me and the anxiety is nearly unbearable.

While I want the decision from me and the second opinion dr to be to stop ECT, I will keep an open mind. Maybe I need to stop for now so the anxiety can subside. Maybe I would need to start up again in the future. Maybe I will ever do it again, and will play pharmaceutical roulette with my psychiatrist if I need it. I just know I Need To Take Care Of Myself. And I’m holding on to ECT being OVER.

Anxiety Blows

I deal with anxiety on a daily basis, besides the bipolar disorder. I have generalized anxiety disorder including some form of OCD. I take meds for it, and I use a lot of grounding and mindfulness skills to work through the moments of unease and of panic.

The whole process and concept of ECT weirds me out and makes me anxious, starting several days before treatment. I have trouble managing the anxiety. And then I had the unfortunate experience of waking up after anesthesia was administered and before the procedure started to a feeling of not being able to breathe and not being able to move or talk to tell anyone because of the paralytic administered for the treatment. The experience lasted only a handful of seconds but scared the bejeezus out of me. And so now I Really Hate ECT and get super anxious leading up to treatment. Doggone it that it works for me!

This experience happened to me again last Thursday. I talked to my psychiatrist and to the ECT team about my anxiety-attack-level of panic, but it was my therapist the next day who Finally had something sympathetic and helpful to say! My anxiety is normal and doing what it is supposed to do – warn me of danger – he said. And all the coping skills I’ve learned and practiced for mood shifts and crises Will Work for this anxiety too. Now that my mood is stable, I have the opportunity to use these skills for naturally occurring emotions, and to deal with my anxiety disorder.

Hallelujah! Something to tell myself in the moment, as well as “tricks” to try when the anxiety prevents me from being in the moment, such as writing about the anxiety, both to get support from my support system, as well as to sort out what I’m feeling, and get some distance from what I’m feeling. And What Am I Feeling? Vibrating in the center of my solar plexus. Shallower breathing than I should be doing. Thoughts jumping from partially-formed thought to an awareness of panic that stops all thoughts. Fear. Paranoia. Failure.

Anxiety Blows.

Self Care – Hospital and ECT

I was in the hospital the first three weeks of April after my last post. I took care of myself by going in the hospital to be kept safe from my suicidal impulses and to start ECT again. As a common meme says, “It’s ok to ask for help. It’s ok to start again. It’s ok to say no. It’s ok to rest. It’s ok to let go. It’s ok not to be ok.” Going in the hospital and starting ECT again was telling myself it’s ok not to be ok, and it’s ok to rest and to start over again. Having had success with ECT at the end of 2018, my psychiatrist recommended a course of it again including maintenance to hopefully prevent a mood crash again after only a couple months of stability.

Now I am out of the hospital, adjusting to life without suicidal thoughts, and have had 13 treatments. My mood is holding steady between treatments and suicidal thoughts are drastically reduced. I can’t say I’m feeling as good as I had been after the last course of ECT. But I did just go from ECT 3x/week to ECT 2x/week. I’m staying the course by keeping up treatments even though I don’t really want to do ECT. Something about it just weirds me out. But I really want the experience of feeling good for an extended period of time, and ECT seems to be the main treatment that leads there.

I continue talking with my therapist over the phone on Fridays. And my mom is my companion for ECT, driving into the city and then keeping watch over me as I recover. I’m able to reach out to these thick branches of my support system, as well as some smaller limbs too, as I try to feel not alone. I wish I felt good and strong and happy again, but at this point I at least have hope that it will happen again as ECT continues.

Clearing Out Storage

As many of you know, I moved from Chicago to Dallas a little over a year ago in order to live with family instead of alone. It tore me up inside to leave all the people who cared for me (psychiatrist, therapists, pastor), all the friends who loved me, all the sites and people who were part of my adopted hometown (Chicago was longest I lived in one metro area as an adult), and even my hair stylist. I ended up in a partial day program to help regulate my life and schedule and emotions, which ended up in a horrible hospitalization, as I tried to settle in to my new home.

Now for the last month I’ve been making my room more my own with stuff from my storage unit. I kept everything from a couch and bed to kitchen supplies and decor for a one-bedroom apartment or for sharing a house. For the first six months of being in Dallas, I expected I would move out of the family’s house. For the next 3 months I was focused on another hospitalization and then ECT. For the last 3 months I have been coming to terms with the newly-realized fact that I cannot live alone. I need to live with family, or at least a housemate. (I am lucky with all that is handled for me right now living with family! Things like sharing cleaning and cooking so that I’m doing much, much less than when living alone.)

The next step, after being ok with not ever living alone again, is deciding where I should live. Do I look for a place to live AND a housemate? If so, back in Chicago, out in CA (where I feel at home, having lived my first 30 years there), or even in the Pacific Northwest, so that maybe I’d have a support system or not move again if I’m in a place I want to settle? Or do I stay near family, but in my own place with a housemate? Or stay With family, as I am now? I have defaulted to living With family and trying to notice the plus sides and mitigate the downsides. The worst part is that we have very different values, such that we cannot even mention or talk about religion, politics or other things that are important to us.

So, I’ve kind of decided to live with family and make the best of it. This is really hard, because even if I didn’t live with them, I would want to share my life changes and activities with them. Though I could still move out to a place I’d rather live than <anywhere in Texas>, I am throwing my lot in with family and where they live so that I can have the trade-offs. OMG. What am I thinking? This is a huge decision that I can’t really get my mind around. But I’m acting As If I’ve made the decision, as various therapies tell you to do, to keep from being frozen. I’m moving into the future.

So, the next step is what to do about all my stuff in storage. There are more things I could unpack and take to the house to personalize my living space and update my kitchen supplies. So I’m doing that. And the rest? (1) There is stuff such as keepsakes and pictures (before the digital age, kids) that, of course, I need to store somewhere. My family has turned one room into storage for all of our stuff, so I’m schlepping stuff upstairs every time I go up. (2) There is stuff that I would use for my life in an apartment or house shared with someone else. With a great deal of effort I could unpack, photograph it and put on an app to sell it. OR, I could donate the mostly really nice stuff for the kitchen and the used furniture I got from thrift stores myself (and kept in good condition!). I have decided to donate everything, even the really good kitchen stuff. It’s a way to make room for the future by getting rid of the past, I think.


All of this has been happening in the last couple weeks as the spring equinox and related seasonal changes have been wreaking havoc on my mood. So even if my mood is stabilizing a little bit now, my emotions are All.Over.The.Place. There is specific grief over items I am saying goodbye to. There is general grief about deciding to stay in TX and to live with family. There is fear about an unknown and uncomfortable future that I’m walking into, and that I’m letting other people have some control over. Sadness. Relief. Anxiety. Hopefulness. Resignation.

I think the gamut of feelings cycling through my body, as well as the thoughts about everything in my life circling without stopping on one, is contributing to my suicidality. I almost did something yesterday a couple times, but I moved forward and made a different decision. I’m both happy and mad about not doing anything. Just writing about the feelings is causing pain in my chest, labored breathing, heart palpitations – anxiety. And the desire to die and put an end to all of it becomes strong. It’s as though it is the first coping skill that comes up. It’s not a good coping skill, but it’s the strongest and longest-lasting. I have people to talk to, including my psychiatrist and therapist, and I have all the crisis numbers too.

The Power of Community

Yesterday I posted about how I experience suicidal ideation. I have followers on WordPress, and the blog crossposts on Twitter and Facebook with followers in both places. On all three platforms I got responses concerned about my safety.

Thank you everyone!!

Even though I always have a plan, and the impulses, thoughts and feelings are usually present, yesterday I was not worried about my safety. But I did feel Very Alone. I know people who have suicidal thoughts every once and awhile, and I’ve met people who deal with chronic suicidal thoughts like I do. Heck, psychiatrists have told me about patients like me. But it’s so easy to feel alone when suicidal ideation takes over multiple times an hour!

But yesterday You, Dear Readers, helped me feel seen and heard and not alone. You contacted me, commented, reposted, gave contact info and made sure I had the suicide prevention lifeline number (800-273-TALK). You reminded me that others have this experience and make it to the other side.

I wear a ring that goes around my finger three times. I say it is my “power of community” ring because the three rings remind me of how powerful community has been for keeping me alive and safe. It’s so easy with suicidal ideation to feel lost and alone.

Now, if y’all could point me to people with chronic ideation, that would be great! No one has ideas about how to live with it.

Mixed Up Feelings

I’m all over the place with my feelings. Not even sure if my mood is shifting too, or just feel down because of so many feelings. I was in a minor car accident this week, with just enough damage to the car to not be driveable. It’s an 18-year-old car, so after a year of constant fixing of things, I decided it’s time to sell or donate for a couple hundred dollars at most, instead of even paying a deductible more for her.

My therapist reminded me that this is a loss, and a sudden one at that. I’ve had the car since its third mile, and for 18 years. I guess it’s natural to get emotional over cleaning out personal items. Not sad, but shaky, like after a rush of adrenaline drains out. I wasn’t sure I’d be able to drive with how shaky I was! But it lessened a bit over the next hour until I had to drive to my therapist.

Now, instead of getting a new-to-me used car, I’m adopting my parents’ car, and all of us will share it. They use it more than they think, but still not very much. So if we coordinate our appointments with a google calendar or something (recommendations accepted!), we should be able to share it. In a year or two, we’ll get a newer car, since this one is pretty old too (17-years-old, but very low mileage).

Deciding to adopt this car into my life was a hard change. It’s connected to the constant debate I have about whether I want to stay in my family’s house or get a housemate and house/apartment of my own. And if I move, do I stay near family, or go back to Chicago, or to California or Oregon, where my roots are? Adopting a family car seems like saying I’m staying in the family house and really making a commitment to live communally with people I have very little in common with. Which if true, begs the question of why keep a storage unit of stuff to populate an apartment.

Do you see my dilemma? I know that no decision is permanent but it feels that way, saying goodbye to my car at all, sharing a car which is hard if not in the same house. My feelings are all over the place! Sad, shaky, out-of-place.

So I presented to my therapist my goal this year of feeling more comfortable with family and with my new stable (I hope) self, and my housing dilemma. He noted that it’s not a specific goal, and I clarified that I’m waiting for a feeling of home and belonging. I still feel like I’m borrowing the guest room, plus the discomfort of being in a car I would Not have chosen.

We narrowed down that I can’t find that feeling until I make the room my own (and the car…) and get more stuff out of storage. With more of my stuff around me, I can see if I can find some of that comfort. And maybe along the way I’ll find more comfort being with these people? That’s part of the belonging too – space AND people. Maybe my feelings will even out a bit in this process too.